Thank you all for your prayers this week as we enter the Delayed Intensification Phase of treatment. Katherine's counts were above 900 which is very good, and we are able to continue with treatment as scheduled. We got some additional schedules this week, and found out that they have changed the standard protocol within the last month, so I'll have to update the chemo schedule calendar with the new changes. This phase was supposed to begin with 21 days straight of steroids- but they have changed that to 7 days on/7 days off/7 days on. Apparently lots of kids were having significant problems with weak bones, so they've shortened the duration and upped the dosage to compensate. Please pray for bone strength for our little girl. I can't imagine Katherine with a bone fracture in the middle of all of this...
Also, I think that we will continue with treatment as scheduled regardless of Katherine's counts from here on out. The only thing that will be adjusted due to low counts are the oral chemo drugs that we administer at home.
Katherine is visibly exhausted today. She has dark rings under her eyes and is not her normal energetic self. I think this is a result of the steroids. Her appetite is not elevated like it has been during previous iterations of steroids, but this will probably change in the next couple of days. We're actually hoping that her appetite increases a bit, since she hasn't been eating all that well lately.
Joshua, on the other hand, eats EVERYTHING. We took him to the high school track on Wednesday evening to watch mommy do some laps around the track. Half way through, I had to remove some large pebbles from his mouth as he decided to eat the sand from the long jump pit....
We thank you for all of your prayers and support.
Dan.
6 comments:
Dan, Marleny, Katherine and Joshua,
Thank you for the update on Katherine. May God protect her bones from harm during the treatment and give her strength at this time. All of you are in my prayers that God will sustain you, heal Katherine, give you rest and watch over Joshua as he explores his new surroundings through crawling, standing, eating rocks etc. Dan, you ate some unusual things as a little boy!!! Love to all, Mom, Sue, Grandma, Grandma
Dear Dan, Marleny, Katherine, and Joshua,
You are such a sweet family and we love you all so much. We continue to pray for Katherine's strength and healing and also for you all.
Love,
Jim, Pam, Jake, and Mark
Thanks for the update. I have not been able to check the site to see what is going on with you guys. We will continue to pray for her. hugs and kisses to the kids and they two of you!
Dan & Marleny,
The Fourth of July is upon us, but Sherri and I don't want you to think that we are taking a holiday from our prayers for you all, Katherine, and Joshua. We are striving to hold you up daily before our Heavenly Father for His strength to be all of yours, and for full healing and wholeness for Katherine. My readings this morning were in Mark 6:30-52. Many times we have found it difficult to trust the Lord for the provisions we need in life, both daily provisions and extraordinary provisions. Yet He has always met our needs; and we are continually praying that you will find His supply more than enough. Prayerfully, Fred & Sherri Fishel
I'm so glad to see that things are going on track. I will continue to pray for you guys!
Amanda Fortney
You are at the top of the kids' "What do you want to pray for tonight" list. We continue to lift you up asking that God would continue to reveal himself to you and hold you up through this.
Dave, Monica, Emma, Elliot, Lizzy, Nora
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