It is with a heavy heart that we plead with you to lift our family up in prayer. We have had a rough few days over the last week and a half, but our world was turned upside down on Thursday of last week, Valentine’s Day nonetheless. Two weeks ago, I felt a small lymph node under Katherine’s arm, in addition to the ones that we had been feeling on her neck for a little while now. We were concerned and so I took her in to see the pediatrician. The doctor was of the opinion that the lymph nodes were small, moveable, and not in any scary place; so they should not be any cause for alarm. However, because this was the second time that I brought her in to check her lymph nodes, the doctor decided to do a CBC (complete blood count) test on her, to set our minds at ease. He also ordered an x-ray of her chest to make sure there were no swollen lymph nodes in the chest area. That afternoon, the pediatrician called me and said that they x-ray was normal, there were no nodes in the chest; however, the blood test had come back a bit abnormal. He explained to me that her white blood count, as well as her hemoglobin was just a bit under the expected ranges for a child her age, and therefore, he wanted us to meet with another doctor, a hematologist a St. Francis. Of course I was scared by the type of doctor that we had been referred to, but I stayed optimistic and we went the following day to meet with the new doctor. There was not a clear diagnosis made, as the hematologist too could not find an explanation as to why Katherine had so many little lymph nodes around her neck or why her blood counts were off, so he suggested that we just watch the counts for a few days. They did more bloodwork, and while there was some fluctuation in the numbers, her white blood count or hemoglobin never came up to the normal ranges. Under the microscope the pathologist could not identify any cells that looked suspicious, only what they referred to as “immature cells” that they thought would mature into the “normal cells”. So, the hematologist called one afternoon to ask us that we go ahead and do a bone marrow check on her to rule out leukemia. That scared me even more, leukemia! We were a little nervous to put her through that procedure, but decided to do it. We took her in last Thursday for a bone marrow check. Katherine did great, she did fight to get the IV put in her little hand, but after that she handled it like a champ. After the procedure she woke up quickly and did just fine the rest of the day. And we waited to hear from the doctor. At around 5:45 we got the call. The doctor was calling us with the results.
Unfortunately the news we received from the doctor was not positive. In fact, it was shocking and devastating at the same time. Kateli has been diagnosed with pre cursor B cell Leukemia, or Acute Lymphoblastic Leukemia (ALL). I will never forget what I felt in my heart as I heard the doctor speak those words to us over the phone. My heart sunk, my mouth dried up and my eyes welled up with endless tears for about the next two days. It was horrible to come to grips with that kind of news, especially seeing as how our little girl is asymptomatic.
15 comments:
Marleny, Dan, Katherine, and Joshua we are lifting you up in prayer every moment of every day. We will continue to do so until this is all over. We love you all.
Mariafer, Jorge and Adreana.
We will keep you all in our daily prayers. Be optimistic and continue to have faith that soon with Chemotherapy treatment it will archive remission. We love you all. Hugs and kisses.
Marta, Misael, and Daniela.
This is Jacquelyn's friend Amanda from the birthday party (Eli's mom). I just wanted to let you know I will be praying like crazy for your little girl. I'll be praying for complete healing and that it will miraculously be gone before they have to start treatment or that it will just disappear completely after just a little treatment. Please let me know if we can do anything. Just know you have lots of people praying for your little girl.
Marleny & Dan-
I too will be constantly lifting up Katherine in prayer.
If there is anything at all that I can do to help with Joshua while your attention needs to be with Kathrine, just let me know. The church is close to the hospital.
May God keep you strong during this time.
Much love and many, many prayers,
Amy
Marleny, Dan, Katherine & Joshua-Your family has not left our minds or prayers these past few days. As you know Katherine holds a special place in our hearts; our prayers will be with her continually. Our prayers will also be with you two as well as Katherine's grandparents and other family members. We are here to do whatever you need done-trips to the airport, feed the dog, take care of Joshua, bring in the mail or just sit and hold your hand.
God does have you in His hands every minute of every day.
Jim & Jo
Dan, Marleny, Katherine,and Joshua,
We love you all and will be praying for you every day. Your love for Katherine will give her strength as she goes through this. Our entire Church family will be praying for her, too.
Love,
Jim, Pam, Jake, and Mark
I just want you to know that you will be surrounded by prayers as you navigate through your upcoming days. Please don't be afraid to ask for anything! We are here and always willing to do what we can. We all send our love and support.
Beth
I am so sorry to hear about Katherine. I want you to know that I will be praying for her daily and asking all of my friends and family to pray as well. If you need anything, don't hesitate to ask! I have so enjoyed getting to know your little girl working with her at the Kirk. I can't wait to get to play with her once again! Try to keep your spirits up and know that God is in control of this situation and he will be holding on to Katherine's hand throughout all that she will endure. With Love, Melissa Summerlin...Mornings for Moms
Marleny, Dan, Katherine, and Joshua,
I just want you to know that your family will be in our prayers. If you need anything we would be more than happy to help. May all of you feel God's love right now when you need it most.
Jana, Justin, Samantha, and Alexandra
Hello, I am Angela from Kansas City. I do not know your family, however, I received an email from my sister in Jefferson City, MO (Kendall Grayson) whom received an email from her friend in OKC thats friends of yours, with an urgent request for prayer. I'm so sorry this is happening to your family. I hope you find comfort in knowing that my family will be praying with you and your friends and family for strength, healing and comfort.
My friend Marleny....i am sorry the journey that has been brought to you and Dan. We will have your family and Kateli in our prayers every moment we have. We are hear for you and your family...i love you and you are in God's hands...he will protect Kateli.
Sinceramente no tengo palabras para esto que esta sucediendo en su familia, pero si les puedo ayudar muchisimo con mis oraciones, yo tengo hijas y se el dolor que se siente cuando ellos padecen algo. Marleny tienes que ser muy fuerte!!! y ya desde ahora te admiro. Estaran todos en mis oraciones!!!
Thank you for sharing your journey. I'm a friend of a friend (Sharon Mulder Fikkert), and our daughter has been in the hospital for the past two weeks and today she(Abigail 3yrs) was diagnosed with ALL.
I find strength and encouragement in your blog.
Nathan Heeringa
Nathan,
You and your family are precious. I don't know you, but I am praying for you as of last night when I heard about little Abigail. My heart goes out to you, and I pray that God gives you strength beyond understanding. The he surrounds you with the people to carry you through this and be there for you and your family. I pray for the doctors, and for little Abigail as she begins treatment. I've posted a request for prayer for your family from all of our followers, because I know the power of prayer. They carried us through each moment of every day, and I pray the same for you.
I hope that this blog helps you and your wife. I would love to hear from you and get updates on Abigail's progress through treatment if that is not too much to ask.
Please take care and give your precious baby a hug from us.
Marleny
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